John Dada heard from a parent who received confirmation that his child is suitable for and has been offered life changing treatment In Italy. (Bone marrow transplant Nikki believes but will need to confirm this) It is the UN Sickle Cell day this month and John thought fleetingly about marking this again this year but it seems that the staff, the community and resources are overstretched due to the post-election turmoil. It is hopefully next year the situation will be improved enough for this rural community, who organised and held what I believe to be one of the most spectacular and successful UN SC Day Celebrations to do so again.
Sadly due to the trouble no monthly support groups have been held. Also a key member of this group died. It is believed that the stress of the conflict contributed to his death.