John tells that:
"We had a radio panel discussion yesterday (18th) and the feedbacks we got were very encouraging.
The TV Panel discussion was recorded in open air. We had two genetic counsellors, two parents and a sickle cell patient on the panel to share experiences and raise awareness about tomorrow's event.
The First Lady and Mrs Usman witness a test on an under-five.
Originally uploaded by Dadamac Community
This is Cicely's (VSO volunteer at FF) edited account of the UN Sickle Cell Awareness event which Fantsuam Foundation was instrumental in organising.
"Sickle Cell Anaemia – these are words which most Britons will recognise. In fact I’m sure they would be recognised by most societies that have large population of West Africans. Except perhaps in Kafanchan, or indeed much of rural Nigeria.
SICKLE Cell Disease is an agonising blood condition which affects one in every four West Africans. While it is generally controlled in the western world, a lack of medication and funding in Africa means that victims will regularly die.
The Community Communication Centre (CCC) at Fantsuam Foundation has once again come in for some richly-deserved recognition.
The centre was funded by the Nigerian Government and, at the end of May, was the subject of an inspection by visitors from the Nigerian Communications Commission (the country's regulator of Communications). On their previous visit, the inspectors had hailed the CCC as "a Flagship.
This time, an external technical expert was sent to conduct an objective assessment of the CCC. The inspector said he had visited 27 such centres and that none came close to the FF's.
Wednesday's weekly online meeting between the UK and rural Nigeria came up against a familiar enemy - connectivity problems. Initially things looked bleak as we faced a long time delay with receiving and sending Skype messages. However, following a quick exchange of SMS messages the meeting was finally able to start, allowing John Dada to appear online for half an hour to bring us up to date with the latest news.
We were pleased to hear that the ESSPIN programme is now well underway and are looking forward to seeing the photos.
John also informed us that preparations for the Sickle Cell Awareness Day Celebrations had entered the final phase.
However we were especially excited to learn that over the last two months a series of training courses has been under way at Fantsuam Foundation. John said that virtually every family in their village had now attended one or more of these sessions. He has asked a member of his team to send me photos and a short summary of the training taking place.